By Joseph H. Kanter
Guinea pigs--anecdotal drugs -- A highway map to the reply -- the overall challenge -- info is the most important -- digital clinical files (EMRs) -- sufferer activist -- The Kanter relatives origin (KFF) -- the longer term possession of your info
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Extra resources for Your life, your health : share your health data electronically-- it may save your life
Sample text
Therefore, faced with conflicting recommendations from doctors— based largely on their individual anecdotal experiences—I was forced to make a life-or-death decision in the absence of the real-world scientifi c data I wanted in order to make that decision an informed one. ) among all patients similar to me who had undergone such a treatment? In making many other consumer decisions, such as purchasing appliances, real-world data on consumer experiences and product reliability over time were readily available, but for this most critical decision that affected my life, my health, and my future, I would have to rely on the anecdotal experiences of my physicians, and not on the hard scientific evidence I sought.
1 Guinea Pigs – Anecdotal Medicine The amount of death and disease would be less if all disease were left to itself. —Dr. Jacob Bigelow What the public expects and what is healthy for an individual are two very different things. —Esther Williams A November 2009 piece in the New York Times underscores the points highlighted by the above quotes. “Making Health Care Better” by David Leonhardt begins as follows:2 During one of our first conversations, Brent James told me a story that you wouldn’t necessarily expect to hear from a doctor.
Kanter Prize recognizes the true calling of medicine – to deliver health care to those in need. This is both the greatest privilege and highest obligation of a physician. ” – Alan Leff, MD, Professor of Medicine, Pediatrics, Anesthesiology and Critical Care, and Pharmacology and Physiology at The University of Chicago “Joe’s interest in this arena was stimulated by early work on shared decision making. This pioneering work by Jack Wennberg and his colleagues was inspired by the radical idea that when there are two or more options, the penultimate decision maker must be the patient.